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Alzheimer's and its
impact in the family

 

 

Federico Ortíz-Moreno *

 

 

Alzheimer’s is one of the more terrible diseases we can have, because it not only destroys the person who suffers it, but also the same family who undergoes the consequences. Having to take care of a patient who does not understand the things and that at the same time we do not even know ourselves to understand them make that our life changes completely. People do not understand us, the family goes away...

 

 

Alzheimer’s is one of the more terrible diseases we can have, because it not only destroys the person who suffers it, but also the same family who undergoes the consequences.

 

Having to take care of a patient who does not understand the things and that at the same time we do not even know ourselves to understand them make that our life changes completely. People do not understand us, the family goes away... People think that all that that we say that it happens to us, are pure inventions of ours, that the person is well, that is due to things of his or her age, that we do not have to worry... The reality is other.... There is no support, there is no understanding; there is only loneliness, sadness, anger, desperation, fear to the future, fear to remain alone, fear to lose everything...!

 

Couping with Alzheimer's

 

Those who have lived tragedy to care of a patient with Alzheimer like we do, we know how difficult that is to face the day to day new situations, most of the times exasperating, that it comes to the point that everything becomes cloudy to us, everything comes down. Then, we ask for help and this never comes. People do not understand us; they do not live the 24 hours of the day with in the patient...! And we as family members and as caregivers we feel lonelier.

 

The problems are many to undergo, there are many the problems that we faced. We felt fear, anger, distresses, desperation, loneliness... We felt so many things that it comes to the point that we explode or simply our world comes down without being able to continue helping our love one, the patient.

 

And as you will know to have a relative with Alzheimer, it is hard and devastating. You and me who have live this, who has seen it; we know that it is quite difficult to face a situation like, that this disease practically destroys all the family. Unfortunately there is no cure at the moment Investigations continue, but there is still too much to do.

 

 

A frankly devastating disease

 

The Alzheimer is a frankly devastating disease, because he is not only the patient who suffers it, but also the own family who undergoes it. One would want that the patient could understand us and we talk to them in a logical way, as if this logic he or she will understand. We do not realize that, unfortunately, his o her brain has been destroyed, that it is not his fault of what is happening to him and that his behaviour, often aggressive are product of its own disease.

 

To speak slowly with calm, seeing to him to the eyes, taking him from the hand, loving him, touching him with tenderness and respecting him as an adult helps a lot in these cases. It is obvious that we get desperate and hopeless when they do not understand us, they become anxious, repeat and repeated the same question, they want wanted to go from home, they do not recognize the people, etcetera....

 

But such is the life and we must accept the things so as they are. And although the disease is terrible and the process that the family live, specially the main caregiver, is tremendous, also we must learn to see the positive aspect; then, we, who have had the experience to have lived all this, we have also learn to know the meaning of life, to know what we are, and the important roll that we played in taking care of the ill person

 

If you want support, help and understanding, or you feel desperate, perhaps you can share your experiences with another people.  They can also learn from you, Go to the nearest Alzheimer Association where you are. Sure they will help you.

 

* Federico Ortíz-Moreno, psicólogo, egresado de la Universidad de Monterrey.

Fundador y primer presidente de la Asociación Alzheimer de Monterrey.

 

  

Algunos datos:

 

   ALZHEMER / Los números...    
     

 

  • En el mundo existen más de 36 millones de personas con Alzheimer.

  • Cada año 4.6 millones de personas más.

  • Un nuevo caso cada 4 segundos.  

  • El número de casos se duplica cada 20 años.

  • Para el 2030: Más de 75 millones.

  • Para el 2040: Más de 81 millones.  

  • Para el 2050: Más de 135 millones.  

  • En México: Más de 800 mil personas.

 

   
 
 
 
 
 
   

* Datos tomados de la ADI y fuentes varias.     

 

 

Información tomada de apuntes personales y fuentes varias.  

 

 


 

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